Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Sunday, July 7, 2013

Above the law: America's worst charities


 
Editor's note: CNN has partnered with the Tampa Bay Times and the Center for Investigative Reporting to showcase the results of their year-long investigation to identify America's worst charities.
(CNN) -- The worst charity in America operates from a metal warehouse behind a gas station in Holiday, Florida.

Every year, Kids Wish Network raises millions of dollars in donations in the name of dying children and their families.

Every year, it spends less than 3 cents on the dollar helping kids.

Most of the rest gets diverted to enrich the charity's operators and the for-profit companies Kids Wish hires to drum up donations.

In the past decade alone, Kids Wish has channeled nearly $110 million donated for sick children to its corporate solicitors. An additional $4.8 million has gone to pay the charity's founder and his own consulting firms.

No charity in the nation has siphoned more money away from the needy over a longer period of time.

But Kids Wish is not an isolated case, a yearlong investigation by the Tampa Bay Times and The Center for Investigative Reporting has found.

Using state and federal records, the Times and CIR identified nearly 6,000 charities that have chosen to pay for-profit companies to raise their donations.

Then reporters took an unprecedented look back to zero in on the 50 worst - based on the money they diverted to boiler room operators and other solicitors over a decade.

America's 50 worst charities

These nonprofits adopt popular causes or mimic well-known charity names that fool donors. Then they rake in cash, year after year.

The nation's 50 worst charities have paid their solicitors nearly $1 billion over the past 10 years that could have gone to charitable works.

AC360: CNN's Drew Griffin investigates

Until today, no one had tallied the cost of this parasitic segment of the nonprofit industry or traced the long history of its worst offenders.

Among the findings:

-- The 50 worst charities in America devote less than 4% of donations raised to direct cash aid. Some charities gave even less. Over a decade, one diabetes charity raised nearly $14 million and gave about $10,000 to patients. Six spent no cash at all on their cause.

-- Even as they plead for financial support, operators at many of the 50 worst charities have lied to donors about where their money goes, taken multiple salaries, secretly paid themselves consulting fees or arranged fund-raising contracts with friends. One cancer charity paid a company owned by the president's son nearly $18 million over eight years to solicit funds. A medical charity paid its biggest research grant to its president's own for-profit company.

-- Some nonprofits are little more than fronts for fund-raising companies, which bankroll their startup costs, lock them into exclusive contracts at exorbitant rates and even drive the charities into debt. Florida-based Project Cure has raised more than $65 million since 1998, but every year has wound up owing its fundraiser more than what was raised. According to its latest financial filing, the nonprofit is $3 million in debt.

-- To disguise the meager amount of money that reaches those in need, charities use accounting tricks and inflate the value of donated dollar-store cast-offs - snack cakes and air fresheners - that they give to dying cancer patients and homeless veterans.

Over the past six months, the Times and CIR called or mailed certified letters to the leaders of Kids Wish Network and the 49 other charities that have paid the most to solicitors.

Most declined to answer questions about their programs or would speak only through an attorney.

Approached in person, one charity manager threatened to call the police; another refused to open the door. A third charity's president took off in his truck at the sight of a reporter with a camera.

Kids Wish has hired Melissa Schwartz, a crisis management specialist in New York City who previously worked for the federal government after the 2010 BP oil spill.

Schwartz said Kids Wish hires solicitors so its staff can focus on working with children, not on raising donations. According to its 2011 IRS filing, the charity has 51 employees. Schwartz also said donors who give directly to the charity instead of in response to solicitations ensure that 100% of their pledge will be spent granting wishes.

She declined to answer additional questions about Kids Wish's fund-raising operations, saying the charity "is focused on the future."

Charity operators who would talk defended their work, saying raising money is expensive especially in tough economic times.

"No parent has ever turned me down for assistance because we got our money from a telemarketer," said David Thelen, who runs the Committee for Missing Children in Lawrenceville, Georgia. The charity is No. 13 on the Times/CIR list.

Identifying the 50 worst

To identify America's 50 worst charities, the Times and CIR pieced together tens of thousands of pages of public records collected by the federal government and 36 states. Reporters started in California, Florida and New York, where regulators require charities to report results of individual fund-raising campaigns.

The Times and CIR used those records to flag a specific kind of charity: those that pay for-profit corporations to raise the vast majority of their donations year in and year out.

Search for charities that have been disciplined

The effort identified hundreds of charities that run donation drives across the country and regularly give their solicitors at least two-thirds of the take. Experts say good charities should spend about half that much - no more than 35 cents to raise a dollar.

For the worst charities, writing big checks to telemarketers isn't an anomaly. It's a way of life.

The Times and CIR charted each charity's performance over the past decade and ranked them based on the total donations diverted to fundraisers, arriving at the 50 worst charities. By this measure, Kids Wish tops the list.

Tracking donations diverted to fund-raising is just one way to rate a charity's performance. But experts called the rating fair and said it would provide a unique resource to help donors avoid bad charities.

Doug White, one of the nation's foremost experts on the ethics of charity fund-raising, dismisses the argument made by charities that without telemarketers they would have no money.

"When you weigh that in terms of values, of what the charity is supposed to be doing and what the donor is being told in the process, the house comes tumbling down," said White, who teaches in Columbia University's fund-raising management master's degree program.

Share your tips on suspicious charities

Collectively the 50 worst charities raised more than $1.3 billion over the past decade and paid nearly $1 billion of that directly to the companies that raise their donations.

If that money had gone to charity, it would have been enough to build 20,000 Habitat for Humanity homes, buy 7 million wheelchairs or pay for mammograms for nearly 10 million uninsured women.



Instead it funded charities like Youth Development Fund.

The Tennessee charity, which came in at No. 12, has been around for 30 years. Over the past decade it has raised nearly $30 million from donors by promising to educate children about drug abuse, health and fitness.

About 80% of what's donated each year goes directly to solicitation companies.

Most of what's left pays for one thing: scuba-diving videos starring the charity's founder and president, Rick Bowen.

Bowen's charity pays his own for-profit production company about $200,000 a year to make the videos. Then the charity pays to air Rick Bowen Deep-Sea Diving on a local Knoxville station. The program makes no mention of Youth Development Fund.

In its IRS tax filings, the charity reports that its programming reaches "an estimated audience of 1.3 million."

But, according to the station manager, the show attracts about 3,600 viewers a week.

Bowen, who runs the charity out of his Knoxville condo, declined to be interviewed. He defended the practice of hiring his own company with the public's donations.

"We just happened to be the low bidder," he said.

Good vs. bad charities

America's worst charities look nothing like Habitat for Humanity, Boys and Girls Clubs or thousands of other charities, large and small, that are dedicated to helping the sick and needy.

Well-run charities rely on their own staff to raise money from a variety of sources. They spend most of their donations on easy-to-verify activities, whether it's running soup kitchens, supporting cancer research, raising awareness about drunken driving or building homes for veterans.

The Times/CIR list of worst charities, meanwhile, is littered with organizations that exhibit red flags for fraud, waste and mismanagement.

Thirty-nine have been disciplined by state regulators, some as many as seven times.

Eight of the charities have been banned in at least one state.

One was shut down by regulators but reopened under a new name.

A third of the charities' founders and executives have put relatives on the payroll or the board of directors.

How states failed to regulate charity scams

For eight years, American Breast Cancer Foundation paid Joseph Wolf's telemarketing company to generate donations.

His mother, Phyllis Wolf, had founded the Baltimore-based charity and was its president until she was forced to resign in 2010.

While she ran the charity, her son's company, Non Profit Promotions, collected $18 million in telemarketing fees.

Phyllis Wolf left the charity after the payments to her son attracted media attention in 2010. The charity has since stopped using telemarketers, including Joseph Wolf's.

Phyllis and Joseph Wolf did not respond to several calls seeking comment.

How to help: CNN's Impact Your World

The nation's worst charities are large and small. Some are one-person outfits operating from run-down apartments. Others claim hundreds of employees and a half-dozen locations around the country. One lists a UPS mail box as its headquarters address.

Several play off the names of well-known organizations, confusing donors.

Among those on the Times/CIR list are Kids Wish Network, Children's Wish Foundation International and Wishing Well Foundation. All of the names sound like the original, Make-A-Wish, which does not hire professional telemarketers.

Make-A-Wish officials say they've spent years fielding complaints from people who were solicited by sound-a-like charities.

"While some of the donations go elsewhere, all the bad public relations that comes with telemarketing seems to come to us," said Make-A-Wish spokesman Paul Allvin.

Donors who answer calls from the 50 worst charities hear professionally honed messages, designed to leverage popular causes and hide one crucial fact: Almost nothing goes to charity.

When telemarketers for Kids Wish call potential donors, they open with a name you think you've heard before.

Then they ask potential donors to "imagine the heartbreak of losing a child to a terminal illness," according to scripts filed with North Carolina regulators in 2010.

Kids Wish, the callers say, wants to fulfill their wishes "while they are still healthy enough to enjoy them."

They leave out the fact that most of the charity's good deeds involve handing out gift cards to hospitalized children and donated coloring books and board games to healthy kids around the country. And they don't mention the millions of dollars spent on salaries and fund-raising every year.

The biggest difference between good charities and the nation's worst is the bottom line.

Every charity has salary, overhead and fund-raising costs.

But several watchdog organizations say charities should spend no more than 35% of the money they raise on fund-raising expenses.

The Make-A-Wish Foundation of Central and North Florida is one of dozens of Make-A-Wish chapters across the country.

Last year, it reported raising $3.1 million cash and spent about 60% of that -- $1.8 million -- granting wishes.

The same year, Kids Wish raised $18.6 million, its tax filing shows. It spent just $240,000 granting wishes -- 1% of the cash raised.

Read a full version of this report

Center for Investigative Reporting: A failure of regulation

Family of connections bind several of America's worst charities
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Story taken from cnn.com







Tuesday, June 18, 2013

Losing Control and Learning to Trust: My Unexpected Diagnosis




This is a very personal column. In December of last year, I was diagnosed with prostate cancer. There were no symptoms or problems, just some results from a routine blood test that needed to be checked out. I remember being on a conference call when I saw the doctor was phoning with the results of a biopsy, but continued on with the other call assuming I could return it later to hear that there were no problems. There were problems, he told me, and I would need to see a surgeon.

Surprise was not the right word -- not even shock. The news felt incredulous to me. I was about to launch a new book tour early in 2013 and everything seemed to be in control. And Sojourners was involved in intense advocacy work around immigration reform, gun violence, and the budget/sequester battles. There had to be a mistake, or surely some convenient treatment that would suffice. Certainly, I would work this all out privately, and stay on schedule for everything else. But then the conversations started, as did meetings, further testing, time-consuming activities, discussions of medical options -- and a deepening anxiety began to grow over the next several weeks.

The book tour for On God's Side, both U.S. and U.K., had to be postponed and reset without saying why. I kept the health news and discussions in a small and close circle of family, friends, and senior staff. And I did my best to go on as if this wasn't happening. But it was.

A quick surgery at the end of the year didn't work out for a number of frustrating reasons, discussions about medical options continued, and my care shifted to the research center at NIH, the National Institutes of Health. There, I took part in a new program using resolution MRI to guide surgical decisions -- still a research effort, and not currently in use elsewhere. Such opportunities are available to anyone in the general public, and people can find out about the work going on at NIH and across the nation at its website. The NIH strives to innovate constantly in all areas of medicine, and their constant hope is that participation in such programs can provide both direct benefits to the individual, and an opportunity for their physician researchers to learn more about how to improve diagnosis and treatment for others in the future. (And, of course, this critical work is being severely cut in the sequester.)

The NIH staff's extraordinary knowledge of this cancer and all cancers, which is prolonging and saving lives, was immediately evident, as was the wonderful care they were showing to me. After more and much deeper testing with their extraordinary methodologies and new technologies, a plan was reached and a date for surgery was set for last Wednesday, June 5.

About one week ago, I had major surgery for prostate cancer. It all went very well; the cancer was contained and removed with no signs of further spreading, pending more pathology reports. This significant surgical procedure, the recovery in a hospital room, and then coming home from such a major impact on my body were all new experiences for me. I went back to the hospital this week for follow-up procedures and check-ups. Everything seems to be fine. The surgery "couldn't have gone better," the doctors say, and I seem to be recovering well, too. They keep telling me to go slow and take my time, which is a very good reminder for me.

It's not only good physical advice for healthy recovery but also spiritual counsel for those of us who sometimes tell time by how much we hope we are changing the world.

This was certainly more "major" surgery than I was acknowledging and admitting to myself. I was stunned by the news in December, and wanted to keep it private -- partly to avoid answering too many public questions on it, but also likely because of some self-denial about it all. I really didn't want to let it affect my book tour, but of course it did in significant ways. During this whole process, I'm learning more and more lessons about losing control and learning to trust instead.

I was in very good hands with my surgeon, and I feel our work is in good hands with all of my colleagues at Sojourners, as I take a few weeks now to rest and recover. It's never just about a leader here at Sojourners because we have such a remarkable team; and it's never just about the team because we have such an extraordinary mission; but it's never even just about our mission because we have a God who will always find ways to bring love and justice into the world with and without us, and sometimes despite our best efforts and human attempts to keep "control."

I spoke with a few close friends before going in for my cancer surgery, a day full of anxiety for someone who had never faced a major health issue before. My old and dear friend, Wes Granberg-Michaelson, contrasted our need for control with the "Prayer of Abandonment" by Charles De Foucauld. So I went back to that classic prayer, and found it the right one to take into surgery for someone who had been totally preoccupied with the absolute craziness of an 18-city book and media tour and was now facing a very personal health crisis.

"I abandon myself into your hands;


do with me what you will.

Whatever you may do, I thank you:

I am ready for all, I accept all.

Let only your will be done in me,

And in all your creatures --

I wish no more than this, O Lord.

Into your hands I commend my soul:

I offer it to you with all the love of

my heart,

for I love you, Lord, and so need to give myself, to surrender myself into your hands without reserve,

and with boundless confidence,

for you are my Father."
It was a perfect prayer for surgery and recovery, and I hope one I remember before my next book tour! A week after surgery, my wonderful colleague at the publisher Brazos/Baker, BJ Heyboer, wrote me what a member of her discernment committee for the Episcopal priesthood had said to her: "Control is an illusion, an illusion that we all pursue. But the sooner you see it as the illusion it is, the better off you -- and your ministry -- will be."

My friend Richard Rohr, who also had a bout with cancer, told me that "these things change our relationship to God." He writes these days about how the "fallings" and "failings" in the second half of life, which are completely beyond our control, can lead us to deeper places than the first half of life can ever go.

And after agonizing repeatedly about how the changes in timing, preparations, focus, and unexpected events significantly altered what I expected this book tour to be, I encountered these words from Soren Kierkegaard, "Life can only be understood backwards, but it must be lived forward."

I am trying to live into that with this book now too, trusting God to use it and take it to the places and people it needs to go. The "tour" was certainly affected by this cancer, more than I wanted to acknowledge or admit. But I believe in the message of the book even more than when I wrote it on sabbatical last year, and the signs of the times suggest that a renewed understanding of "the common good" is absolutely central to a better future for us all. These more relaxed summer weeks for me now will give me time for physical recovery, spiritual reflection, and perhaps some creative space to think about how I might be useful to what God wants to do with this common good message in the days ahead.

Sitting in that hospital room, even in times of pain or anxiety, I was thinking about the billions of people around the world who don't have all these health care resources available to them as we do, and don't even have the chance or option to fight for their lives. That must become a fundamental issue of love and justice for us; and I hope this experience will make it all more personal for me.

My pastor, Jeff Haggray, suggested I not be so private about all this, and that it might be time to offer some personal reflections on this whole process which might be helpful to other people. So I decided to write this.

But life goes on, and I am still coaching my son's Little League baseball team through the play-offs (but in a chair and behind the dug-out fence, at doctor's orders not to risk dodging line drives while coaching at third base!) Our Tigers won their semi-final game last night and we are now in the Championship Game on Saturday! My time with these 10 year olds is my best therapy for recovery.

I would appreciate your prayers for all of us who are wrestling this summer with issues of physical health and spiritual transformation.
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Article written by Jim Wallis for the HuffingtonPost